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Hello everyone. My name is Julianna and I’m 18 years old. I suffer from a rare genetic connective tissue disorder called Ehlers-Danlos syndrome. It effects everything in my life, including walking, eating, and daily activities. Walk with me through my journey with chronic illness.


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  • What is Ehlers-Danlos Syndrome?
  • EDS is a group of connective tissue disorders. They are currently classified into thirteen different subtypes. Twelve of these subtypes can be diagnosed through genetic testing, but the hypermobile type, hEDS, which I have, the gene is unknown and can only be diagnosed based on physical manifestations and symptoms. There are many different symptoms as it can effect every body system such as the skin, organs, muscles, tendons and ligaments, blood vessels, and more.

    Some of my symptoms include headaches, nausea & vomiting, joint pain and subluxations/dislocations, neurological issues, fainting, shifting ribs, back and neck pain, to name a few.

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    Although most chronic illnesses aren’t terminal, they can severely debilitate those who have them such as myself. They can also bring on secondary conditions that could be fatal and disabling.


    Veganism

    I’m vegan for the animals, my health, and for the environment.

    Click here to learn more about its benefits.


    The Environment

    I’m a firm believer in climate change. There are many things we can do to help lessen our carbon footprint.

    Click here to learn more about how you can help.


    Plants, animals, and more plants!

    I LOVE plants and animals. I have a dog, three cats, and a chameleon. I also have many houseplants including succulents and cacti. Keeping house plants brings life to your space and it’s much easier to not kill a plant. They also produce oxygen which can purify the air in your living space. I also have a vegetable garden. It’s the best feeling to be able to go in your backyard, pick food, and eat it! I’m lucky I am able to have the space for it, although you can grow veggies on a balcony, and even on rooftops.

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